Bibliography

Publications based on the National Patient-Reported Outcome Measures (PROMs) programme in England and its development are listed here.  Articles providing an early overview of the programme are also included in the list. Articles are categorised as: a) research in peer reviewed journals; b) grey publications; and c) commentaries, editorials and essays.

Authors of relevant publications are encouraged to contact Jenny Neuburger () to have their publication included.

Research (peer-reviewed journals)

Allwood D, Hildon Z, Black N. Clinicians’ views of formats of performance comparisons. J Eval Clin Pract 2013; 19: 86-93. Link to download paper

Appleby J, Poteliakhoff E, Shah K, Devlin N. Using patient-reported outcome measures to estimate cost-effectiveness of hip replacements in English hospitals. J R Soc Med 2013. Link to download paper

Baker PN, Deehan DJ, Lees D, Jameson S, Avery PJ, Gregg PJ, Reed MR.  The effect of surgical factors on early patient-reported outcome measures (PROMS) following total knee replacement.  J Bone Joint Surg Br 2012; 94-B: 1058-1066.
Link to download paper

Baker P, Cowling P, Kurtz S, Jameson S, Deehan D. Reason for revision influences early patient outcomes after aseptic knee revision.  Clinical Orthopaedics and Related Research 2012; 470: 2244-2252. Link to abstract

Baker P, Petheram TG, Kurtz S, Konttinen YT, Gregg P, Deehan D.  Patient-reported outcome measures after revision of the infected TKR: comparison of single versus two-stage revision.  Knee Surgery, Sports Traumatology, Arthroscopy 2012. Link to abstract

Black N, Browne J, van der Meulen J, Jamieson L, Copley L, Lewsey J. Is their over-utilisation of cataract surgery in England? Brit J Ophthalmol 2009;93:13-17 Link to download paper

Black N, Varagunam M, Hutchings A. Influence of surgical rate on patients’ reported clinical need and outcomes in English NHS. J Public Health 2013; doi: 10.1093/pubmed/fdt088 Link to abstract

Boyce MB, Browne JB. PP74 Comparing the Impact of Clinical Governance Policies in Different Countries: the Example of the English PROMS Programme. J Epidemiol Community Health 2013;67:A78 doi:10.1136/jech-2013-203126.168 Link to abstract

Browne J, Jamieson L, Lewsey J, van der Meulen J, Copley L, Black N. Comparison of case-mix and patients’ reports of outcome in Independent Sector Treatment Centres and NHS providers: prospective cohort study. BMC Health Services Research 2008;8:78 doi:10.1186/1472-6963-8-78 Link to download paper

Browne JP, van der Meulen JH, Lewsey JD, Lamping DL, Black N. Mathematical coupling may account for the association between baseline severity and minimally important difference value. J Clin Epidemiol 2010; 63: 865-874 Link to abstract

Chard J, Kuczawski M, Black N, van der Meulen J. Outcomes of elective surgery undertaken in independent sector treatment centres and NHS providers in England: audit of patient outcomes surgery. BMJ 2011;343:d6404 doi: 0.1136/bmj.d6404 Link to download paper

Corner J, Wagland R, Glaser A, Richards M.  Qualitative analysis of patients’ feedback from a PROMs survey of cancer patients in England.  BMJ Open 2013; 3: e002316. Link to download paper

Coronini-Cronberg S, Appleby J, Thompson J. Application of patient-reported outcome measures (PROMs) data to estimate cost-effectiveness of hernia surgery in England. J R Soc Med 2013.Link to download paper

Devlin N, Parkin D, Browne J. Patient-reported outcomes in the NHS: New methods for analysing and reporting EQ-5D data. Health Economics 2010; 19: 886-905. Link to download paper

Feng Y, Parkin D, Devlin NJ. Assessing the performance of the EQ-VAS in the NHS PROMs programme. Qual Life Res 2013. Link to abstract

Glaser AW, Fraser LK, Corner J, Feltbower R, Morris EJA, Hartwell G, Richards M.  Patient-reported outcomes of cancer survivors in England 1-5 years after diagnosis: a cross-sectional survey.  BMJ Open 2013. doi:10.1136/bmjopen-2012-002317
Link to download paper

Grosse Frie K, van der Meulen J, Black N. Relationship between patients’ reports of complications and symptoms, disability and quality of life after surgery. Brit J Surg 2012; 99: 1156-63  Link to download paper

Grosse Frie K, van der Meulen J, Black N. Single item on satisfaction with condition provided additional insight into impact of surgery. J Clin Epidemiol 2012; 65: 619-26.  Link to abstract

Gutacker, N., Bojke, C., Daidone, S., Devlin, N. & Street, A.D. Hospital Variation in Patient-Reported Outcomes at the Level of EQ-5D Dimensions: Evidence from England. Medical Decision Making, 2013;33(6):804-818. Link to download paper

Gutacker, N., Bojke, C., Daidone, S., Devlin, N., Parkin, D. & Street, A.D. Truly inefficient or providing better quality of care? Analysing the relationship between risk-adjusted hospital costs and patients’ health outcome, Health Economics, doi: 10.1177/1358863X09346658.Link to download paper

Harris KK, Dawson J, Jones LD, Beard DJ, Price AJ. Extending the use of PROMs in the NHS -using the Oxford Knee Score in patients undergoing non-operative management for knee osteoarthritis: a validation study. BMJ Open 2013 Aug 21;3(8):e003365. Link to download paper

Hildon Z, Allwood D, Black N. Making data more meaningful. Patients’ views of the format and content of quality indicators comparing health care providers. Patient Education & Counselling 2012; 88:298-304 Link to download paper

Hildon Z, Allwood D, Black N. Patients’ and clinicians’ views of comparing the performance of health care providers: a qualitative study. Health Expectations 2012. doi:10.1111/hex.12037
Link to abstract

Hildon Z, Allwood D, Black N. Impact of format and content of visual display of data on comprehension, choice and preference: a systematic review. Int J Qual Healthcare 2012;24: 55-64  Link to abstract

Hildon Z, Neuburger J, Allwood D, van der Meulen J, Black N. Clinicians’ and patients’ views of metrics of change derived from patient reported outcome measures (PROMs) for comparing providers’ performance of surgery. BMC Health Serv Res 2012; 12: 171. Link to download paper

Hutchings A, Neuburger J, Gross Frie K, van der Meulen J, Black N. Factors associated with non-response in routine use of patient reported outcome measures after elective surgery in England. Health Qual Life Outcomes 2012; 10: 34. Link to download paper

Hutchings A, Grosse Frie K, Neuburger J, van der Meulen J, Black N. Late response to patient reported outcome questionnaires was associated with worse outcome. J Clin Epidemiol 2013; 66 :218-225.  Link to download paper

Jameson S, Mason J, Baker P, Gregg P, McMurtry I, Deehan DJ, Reed MR.  A comparison of surgical approaches for primary hip arthroplasty: a cohort study of patient reported outcome measures (PROMs) and early revision using linked national databases.  J Arthroplasty 2014; 29: 1248-1255 Link to download paper

 Judge A, Arden NK, Kiran A, Price A, Javaid MK, Beard D, Murray D, Field RE.  Interpretation of patient-reported outcomes for hip and knee replacement surgery.  Identification of thresholds associated with satisfaction with surgery.  J Bone Joint Surg Br 2012: 94-B: 412-418 Link to abstract

Maher EJ.  Managing the consequences of cancer treatment and the English National Cancer Survivorship Initiative.  Acta Oncologica 2013; 52: 225-232. Link to download paper

Nesbitt C, Wilson WR, Lees TA, Stansby G.  Interpretation of patient-reported outcome measures for varicose vein surgery.   Phlebology 2012; 27: 173-8. Link to abstract

Neuburger J, Hutchings A, van der Meulen J, Black N.  Using patient reported outcomes (PROs) to compare the performance of providers: does the choice of measure matter? Medical Care 2013; 51: 517-523. Link to abstract

Neuburger J, Cromwell DA, Hutchings A, Black N, van der Meulen JH. Funnel plots for comparing provider performance based on patient-reported outcome measures. BMJ Qual Saf 2011; 20:1020-1026. Link to download paper

Neuburger J, Hutchings A, Allwood D, Black N, van der Meulen JH. Sociodemographic differences in the severity and duration of disease amongst patients undergoing hip or knee replacement surgery. J Public Health 2012; 34: 421-429 Link to download paper

Neuburger J, Hutchings A, Black H, van der Meulen JH. Socioeconomic differences in patient reported outcomes after a hip and knee replacement in the English National Health Service. J Public Health 2012; 34: 421-429
Link to download paper

Nuttall D, Parkin D, Devlin N. Inter-provider comparisons of patient-reported outcomes: Developing an adjustment to account for differences in patient case-mix. Health Economics 2013; DOI: 10.1002/hec.2999 Link to abstract

Oppe M, Devlin N, Black N. Comparison of the underlying constructs of EQ-5D and Oxford Hip Score: implications for mapping. Value in Health 2011;14: 884-891 Link to abstract

Parkin D, Rice N, Devlin N. Statistical analysis of EQ-5D profiles: Does the use of value sets bias inference? Medical Decision Making 2010; 30: 556-565. Link to download paper

Pennington M, Grieve R, Sekhon JS, Gregg P, Black N, van der Meulen JH. Cemented, cementless, and hybrid prostheses for total hip replacement: a cost-effectiveness analysis. BMJ 2013; 346:f1026.  Link to download paper

Smith PC, Street AD.  On the uses of routine patient-reported health outcome data. Health Economics 2013: 22: 119-131. Link to download paper

Soljak M, Browne J, Lewsey J, Black N. Is there an association between deprivation and pre-operative disease severity? A cross-sectional study of patient-reported health status. Int J Qual Health Care 2009; 21:311-315
Link to download paper

Street A, Gutacker N, Bojke C, Devlin N, Daidone S. Variations in outcome and costs among NHS providers for common surgical procedures: econometric analyses of routinely collected data. National Institute for Health Research. Health Services and Delivery Research 2014:2(1).Link to download paper

Varagunam M, Hutchings A, Neuburger J, Black N. Impact on hospital performance of introducing routine patient reported outcome measures in surgery. J Health Serv Res Policy 2013. DOI: 10.1177/1355819613506187 Link to abstract

Williams DP, Price AJ, Beard DJ, Hadfield SG, Arden NK, Murray DW.  The effects of age on patient-reported outcome measures in total knee replacement. J Bone Joint Surg Br 2013: 95-B: 38-44. Link to download paper

Grey publications                                                      

Department of Health. Patient reported outcome measures (PROMs) in England: A methodology for identifying potential outliers. 2011. Link to download report

Devlin N, Appleby J. Getting the most out of PROMs: putting health outcomes at the heart of NHS decision making. Kings Fund, 2010.
Link to download report

Devlin N, Parkin D, Browne J. Using the EQ-5D as a performance measurement tool in the NHS. Discussion Paper 09/03. City University, 2009.
Link to download paper

Feng Y, Parkin D, Devlin N. An investigation of issues associated with the EQ-VAS in the NHS PROMs programme. OHE Research Paper. Link to download paper

Gutacker N, Bojke C, Daidone S, Devlin N, Street S. Analysing hospital variation in health outcome at the level of EQ-5D dimensions. Centre for Health Economics, University of York; CHE Research Paper 74, 2012.  Link to download paper

Gutacker N, Bojke C, Daidone S, Devlin N, Parkin D, Street A. Truly inefficient or providing better quality of care? Analysing the relationship between risk-adjusted hospital costs and patients’ health outcomes. Centre for Health Economics, University of York; CHE Research
Paper 68, 2011. Link to download paper

London School of Hygiene & Tropical Medicine.  Patient reported outcome measures (PROMs) in elective surgery.  Report to the Department of Health. LSHTM, 2007.  Link to download report

Parkin D, Rice N, Devlin N. Statistical analysis of EQ-5D profiles: does the use of value sets bias inference? Discussion Paper 08/10. City University, 2008. Link to download paper

Commentaries, editorials, essays

Appleby J. Patient reported outcome measures: how are we feeling today? BMJ 2012; 344: d8191 Link to download paper

Black N. Patient reported outcome measures could help transform healthcare.  BMJ 2013;346:f167 Link to download paper

Dawson J, Doll H, Fitzpatrick R, Jenkinson C, Carr AJ. The routine use of patient reported outcome measures in healthcare settings. BMJ 2010; 340: c186. Link to download paper

Kroll T, Wyke S, Jahagirdar DR, Ritchie K. If patient-reported outcome measures are considered key health-care quality indicators, who is excluded from participation? Health Expectations 2012. doi: 10.1111/j.1369-7625.2012.00772.x Link to download paper

Parkin D, Devlin NJ. Using health status to measure NHS performance: casting light in dark places. BMJ Qual Saf 2012; 21: 355-356. Link to download paper

Smith PC, Street A. On the uses of routine patient reported health outcome data. Health Economics 2012;DOI:10.1002/hec.2793.  Link to download paper

Valderas JM, Fitzpatrick R, Roland M. Using health status to measure NHS performance: another step into the dark for the health reform in England. BMJ Qual Saf 2012; 21: 352-353. Link to download paper

Wise J. NHS publishes new data on patient reported health outcomes. BMJ 2010; 341:c5143 Link to download paper

Wolpert M. Do patient reported outcome measures do more harm than good? BMJ 2013; 346 doi: http://dx.doi.org/10.1136/bmj.f2669 Link to paper